| Alien Research Group wrote:|
|Spinal muscular atrophy (SMA), the number one genetic killer of children under the age of two.
ARG, thanks for this. We have a young child in our church (single mom situation) who has this terible disease, BUT, you will not (most of the time) find a happier, more well Adjusted young lady. Zipping around in her wheel chair is a sight to behold, although mom looks tired.
The Dr's said that it would help here strengthen her bones and perhaps give her some more time if she had a Dani (a standing wheelchair). Her state insurance turned them down cold. This is a $15.000 item, so what to do. Her story was picked up by the local paper, and the church (not knowing of the need before the story) became the clearing house for donations from individuals, businesses, etc.. Also, our pastor challenged us to raise enough to cover a major portion of the cost (much more with training etc.). In a very short time, with the community, the fundraisers, and donations from the children to the elders, the chair? is delivered, and there will be a "coming out party" at the church Sept 10th.
My point is, the need is there, the generous people are there, the prayers are there, but, if there is no information let out that there is a need, things become tougher. This is a case in point where, letting the people around you know that there is a need, can lead to a satisfactory resolution of a problem. This is where Woody's charity forum is needed here, it focuses on needs. SMA is truly a terrible thing, but with support from friends, family, and a community that cares, it is an easier burden to bear.
So, give to the charities, but also look around you, there are needs to be met on a local level and a direct donation to an individual cause not only speed the realization of a dream, but makes the donation personally satisfying. Nuf said.