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Christie wrote:Hi – I am logged on as ARGH but I am his sister and mother of the beautiful boy that appears many times on this site. What you did not know, as he intended it that way, is that my brother had Spinal Muscular Atrophy (SMA) as well. He adored his niece and nephews and it broke his heart to know that Lucien would face many of the same challenges as he had. We lost my incredible brother on June 10th to complications of SMA and we miss him terribly. The woot fun, the crazy contests, and especially the community was a big part of his life for quite some time. It is so touching to peek on here periodically and see you unknowingly honoring him the way you have by keeping the SMA charity thread alive. Thank you and blessings to you all. Christie kadence3600@sbcglobal.net PS I would post an updated picture but I am not near as savvy as my brother and do not know how. If you are want to, e-mail me and I will send one to be posted.
Donate in memory of ARGH SMA MISSION
Donation Meter Update!
Donation Meter Update! Thank you!
Volunteer Moderator
If the site asks, earmark the money for research!
Thank you to those who have donated and keep 'em coming! $175 already...wonderful.
bump
pblgov wrote:bump
Pblgov, do you have a direct connection to your charity link? What I am actually asking.....are you and your kids OK?
dontwantaname wrote: Pblgov, do you have a direct connection to your charity link? What I am actually asking.....are you and your kids OK?
my charity link? I'm on the board of directors and one of its major supporters My family is fine - thanks for asking edit: btw I was bumping the ARGH fundraiser
pblgov wrote: my charity link? I'm on the board of directors and one of its major supporters My family is fine - thanks for asking edit: btw I was bumping the ARGH fundraiser
Glad to hear it!
kingsteel wrote: Thank you to those who have donated and keep 'em coming! $175 already...wonderful.
.
dontwantaname wrote: Glad to hear it!
glad I can put your mind at ease
kingsteel wrote: Donate in memory of ARGH SMA MISSION
pblgov wrote: bump
Anyone remember how to do The Bump?
"He that is thy friend indeed, he will help thee in thy need: if thou sorrow, he will weep; if you wake, he cannot sleep; thus of every grief in heart he with thee doth bear a part." Richard Barnfield
bump...
Come on people, if everyone who enjoyed one of ARGH's contest pictures sent in $10, we can make the goal!
Fen, I found your ducks! Contest 73 page 8! Yes it is true, ARGH like ducks! Well, I mean, he did see them in the picture! Be sure to click on the link with the last duck. Pure ARGH! I dare you not to laugh. OK, did you go check? Did you laugh? Now send the 10 bucks! Did you finish the page? Clicked on the Toon link? You owe another $10! Lets see that spaceship smile.
Ah, yes here are the "ducks"
Don't post that last link! And the Toon stuff. You would think it would have been easier for Toon just to mail the damn monkeys!
I always said I would post these pictures and
dontwantaname wrote:I always said I would post these pictures and
I used to have shoes like that! Only mine had a big bar connecting them.
zea3 wrote: I used to have shoes like that! Only mine had a big bar connecting them.
Same ones, only he didn't need the bar, his toes were turned out. I wonder if they made him flat footed. They were made famous with the daily cry "Mom, he's kicking me with his prescription shoes! How did they turn into sour teenagers? Well, at least she is coming out the other end into real adulthood. These are the two pictures I look at when they do things like call at 4am and say stuff like " I can't sleep, what should I do?" The other famous statement from early childhood was "Mom he is climbing the wallunit and he is throwing things!" They were pretty calm kids. Thank goodness!
dontwantaname wrote: Same ones, only he didn't need the bar, his toes were turned out. I wonder if they made him flat footed. They were made famous with the daily cry "Mom, he's kicking me with his prescription shoes! How did they turn into sour teenagers? Well, at least she is coming out the other end into real adulthood. These are the two pictures I look at when they do things like call at 4am and say stuff like " I can't sleep, what should I do?" The other famous statement from early childhood was "Mom he is climbing the wallunit and he is throwing things!" They were pretty calm kids. Thank goodness!
Very cute! Time sure flies, doesn't it.
zea3 wrote: Very cute! Time sure flies, doesn't it.
Well, not when they are climbing the wall unit! But....weren't we 25 just a year ago?
dontwantaname wrote: Well, not when they are climbing the wall unit! But....weren't we 25 just a year ago?
Certainly! On a different subject, remember pretzel/candy cane girl? Well, her sister hair girl has been popping up for the last few days on the today's woot page. She's driving me nuts! Hair girl must go!
zea3 wrote: Certainly! On a different subject, remember pretzel/candy cane girl? Well, her sister hair girl has been popping up for the last few days on the today's woot page. She's driving me nuts! Hair girl must go!
I'm sort of glad she showed up, because I was sure I saw a dark haired Hair girl, but then she was gone. That is what I saw. I hate her too!
pblgov wrote: Please be a part of the cure. From the SMA homepage: "You can dedicate a donation to someone or something in specific, pay for a membership (entirely tax-deductible), or make a donation on behalf of another person. NFG and JG will pass along the dedication request with your donation. " Donate in memory of ARGH SMA MISSION
For Alien How come all his sisters pictures are better than the best two I have of my kids? Well, he is the beautiful child.
Stop running the threads! Or at least bump this back up when you are done!
dontwantaname wrote:Stop running the threads! Or at least bump this back up when you are done!
ME TOO!
z144man wrote: ME TOO!
Did you realize the potential for using them as a weapon? Nice hard shoes to use to ward off evil siblings!
The true perfection of man lies not in what man has, but in what man is. ~Oscar Wilde
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