[quote Hi -
It is Christie, ARGH's sister. I wanted to tell you how incredibly beautiful it was for you guys to think of my brother, and quite frankly of me, on the anniversary of his death. I was very touched and cried (again) when I received all the e-mails and saw the donations. I wanted to post a thank you. Also, I wanted to give a little update on Families of Spinal Muscular Atrophy (fsma.org) and ask a huge favor.
Here is some information on a book about 25 charities that have been highlighted as great non-profits… I know you guys are often looking for worthy causes and this may give you some other ideas.
FSMA Included in New Book
You can vote and help FSMA win!
In an effort to recognize and celebrate the contributions of great non-profits, and simultaneously provide the public with a resource of who to turn to when you need assistance, World Champions is a hard cover coffee table book that features the missions, pictures, and heartwarming stories of 25 charities including FSMA, and the impact they have on society.
The charities featured in this book are part of a unique and first-of-its-kind project. During the project dates listed on the web site (www.25Charities.com), over 25% of gross sales are donated as follows: From each book sold, 5% is donated to the charity of your choice (from the ones featured in the book), an additional 20% is reserved for the charity with the most votes, and yet an extra 2¢ is donated to each charity in the book, in an effort to give each charity your "Two Cents."
If you haven't already done so, please visit us at www.25Charities.com to support Families of SMA.
There is a little information about the progress they are making on a possible treatment option if you are interested on the fsma.org site.
The favor I have to ask has to do with ARGH’s art. I was lurking a few weeks ago around mid-June and saw that some of his stuff was posted. We have not been able to find where he archived his material and would TREASURE having his stuff. If there is any way to make that happen, I would really appreciate it. My e-mail is firstname.lastname@example.org. Please let me know.